Personal Health Records

Sometimes you just have to respond😂

You're very quick off the mark TtDA!  

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At our age I am sure it matters not a jot who has our records NHS direct seem quite able to access them  ,it is not like when they were all on written cards kept in your GPs practice, it is a like  most personal detailes on line now, 

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I am not sure about opting out of this, still undecided.  I doubt my medical records will be of interest to anybody anyway!  I have read that they did use some of this data already to plan the pandemic and attendant issues.  They need anonymous data to decide and see what drugs work and which aren’t so helpful, so as long as what they say is correct, and it stays anonymous, it may help scientists. BUT it’s still a trust issue, hence our indecisiveness.

Somewhere in your medical record will be your Frailty Index Score.  Everyone has been given one whether you know about it or even agreed to it.  That information in the wrong hands could be very damaging from a personal point of view and up to a national basis.  

My take on this is that there is an absolute need for NHS data to be centralised. I am not sure how many of you have been in the unfortunate situation of having to visit a hospital away from your local NHS area you will be aware they have no access to your medical records which can be a problem in the treatment you get. Even local to us Bedford Hospital has no access to Milton Keynes record which leads to delays and duplications which is hardly cost effective. 

So for these reasons I think a centralised system trumps most of the concerns about the extra use of the data. We also have to look at the positive possibilities to the use of the information for research.

David

I am rather shocked to be honest by the amount of trust folks are happy to express in what is happening, but, that’s only my take on things. 

There’s huge amounts of money to be made from  creaming off sensitive information, and selling it to bidders. Not to mention how inept at times the powers that be are with such data. And why almost bury what is happening during a pandemic situation, smells not quite right to me☹️

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