Personal Health Records

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Apparently, it’s quite easy to de anonymise it, and that’s one of the major issues.

Like I suspect many others, we are organ donors (from before you had to opt out), we give our consent to certain research agencies for access to information to assist in research. The difference for me though is that everything has been my choice, and as I read the small print, and understand what’s involved, I am relatively happy that it is still my choice.
Not opting out of this means that your records are then in the hands of others, who may do with it whatever they wish or deem necessary, without you even knowing. So some very sensitive information around things like addictions, mental health, sexual performance, fertility, along with medical conditions such as heart disease, cancer, dementia etc.... are there possibly to be exploited. I am under no illusions that this is being done for monetary gain, nor that any promised anonymity will be compromised, and have the opt out clause available up ti I think the 23rd June.
Others will have a differing view, won’t be bothered about their personal details, and I respect this choice. This is the second time this has been attempted, it was rescinded in 2013, but the fact that there has been little in the way of letting the population know what is about to happen speaks volumes to me.

Its up to the individual, I merely raised it because it’s not generally known what is about to take place. At least those interested can do their own research now, make their own minds up.

The Guardian link outlines the issues around anonymity AD.

Thanks for the heads up, ttda - but this isn't new.  I seem to remember quite a lot of publicity about it a few years ago, including direct contact from our GP surgery about it.  Although we opted in at the time - and I am inclined towards Rocky's viewpoint - I have changed that preference for us both for the time being, so that we can see how the debate develops - as I'm sure it will. Can always change it back, later.

No it’s not new. 2013 last time it was attempted. 🙂

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Far too risky for me. One box ticked or left blank and potentially around 70M NHS patient records are compromised.  Also the NHS has a far from unblemished record of patient confidentiality.

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Above comment Deleted User by me - irrelevant to this thread!  

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